Monday, August 20, 2007

NO MORE SEIZURES!!!

I had to keep him awake for the entire 2 hour drive to the hospital which meant keeping him awake from 9 am to 2 pm when the EEG started hence the bottle to fill him up and put him to sleep for the sleeping part of the test.
These are all of the wires that the paste to his head with what looks like Vaseline.
They have to then but cotton balls on so that they don't stick to the gauze the wrap around to make sure he doesn't pull them off when he wakes up for the awake part of the test.He had just waken up for the awake part luckily he is a very happy baby when he wakes up from his naps.
This is what it looks like without the gauze. He loved the painted walls in the room I meant to get pictures of it but the battery died before I could.


NO MORE SEIZURES FOR ETHAN!!! August 16th is when we had the follow up of the EEG and for the Doctor to check his development in all areas. He tested VERY high!! She said that 90% of the things he is doing are all 6 to 9 months of age. I am sooo proud of my little Ethan!! She said that alot of his development is do to what I have been working with him on. That made me feel like an excellent mother. Sometimes you just need to hear it from someone. There is still a small chance he could have another seizure but at this point the doctor is very very optimistic. He has been officially diagnosed with a mild case of Periventricular Leukomalacia (PVL) but also still the 5th day fits. In english it describes the tiny spaces in his brain...lol. I have been doing some research and have found a few websites with good information. Basically PVL doesn't cause seizures which is why she is still saying the he had the 5th day fits. The major down fall of this appointment and his condition is the only way we are going to know if its the spaces or the 5th day fits is either to have another child because it is 100% hereditary which means if thats the case our next kids will also have it. We are keeping our heads up and praying that it is not the 5th day fits. I am definitely standing in the light at the end of this tunnel. All I needed to know was that our son is developing well and is on the right path to no seizures in the future. The doctor did also have to let me know that there is a 10% chance he could develop cerebral palsy or epilepsy. Thank you all for your strong prayers and thoughts!! God has most definitely answered them!!












3 comments:

Mountain Mama said...

PRAISE GOD!!
I borrowed a picture from your post to put on mine with a link to your post.
Hope you don't mind.
Love ya hon

Helen said...

Hi Jenn from over the waters here in England! I have been following dear little Ethans news on Bevs blog, he is sooooooo cute and those eyes will get him everything!!
I am so glad all is well it must have been so worrying for you all, enjoy being a mum and God Bless you all,

Helen x.

Mountain Mama said...

Hi honey. I just came over to see if you have any new pictures posted. Come on and get that camera out.
Love ya